EducationalSymposia
Description
Room: 112 (P1)
HOW SHOULD WE MEASURE QUALITY OF LIFE IMPACT IN RARE DISEASE?: RECENT LEARNINGS IN SPINAL MUSCULAR ATROPHY
The focus of this symposium is to highlight the challenges of measuring quality of life (QoL) in the context of Health Technology Assessment (HTA) & reimbursement of new medicines, and the approaches to address them. These challenges risk hindering the availability of life-changing treatments for children with rare diseases.

Moderator: Martina Garau, MSc
Principal Economist, Office of Health Economics, London, UK

Speaker: Andrew Lloyd, DPhil
Director, Acaster Lloyd Consulting Ltd., London, UK

Speaker: Julio Lopez Bastida, PhD, BSc, MSc
Professor, Universidad Castilla-La Mancha, Toledo, Spain

Speaker: Josie Godfrey, BA, MA, MA
Director, JG Zebra Consulting, London, UK

(Sponsored by BIOGEN)